INTRODUCTION: Glaucoma is often a misdiagnosed pathology and is one of the main causes of blindness in the world population.Glaucoma frequentlycauses limitations in theactivities of daily livingand changes the patient's quality of life. AIM: The purpose of our study is to describe the life experiences of subjects in southern Italy suffering from glaucoma. METHOD: Phenomenological study RESULTS: From the analysis of interviews six main themes emerged:(1) a profound change in lifestyle, (2) casual diagnosis,(3) independent research,(4) fear of blindness,(5) fear of being a burden to family, and (6) fear of familial pathology. Two additional themes appeared: the subjects felt lucky not to have a deadly disease and were uncertain about the future. CONCLUSION: The negative aspects prevail over any positive facets. A deep understanding of these experiences can help health care professionals to deliver correct holistic support.
Lived experience of patients with glaucoma glaucoma: a phenomenological study / Simeone, Silvio; Pucciarelli, Gianluca; Perrone, Marco; Gargiulo, Gianpaolo; Continisio, G Isabella; Guillari, Assunta; Rea, Teresa. - In: PROFESSIONI INFERMIERISTICHE. - ISSN 0033-0205. - 70:3(2017), pp. 178-186.
Lived experience of patients with glaucoma glaucoma: a phenomenological study
SIMEONE, SILVIO;Gargiulo, Gianpaolo;Continisio, G Isabella;GUILLARI, ASSUNTA;Rea, Teresa
2017
Abstract
INTRODUCTION: Glaucoma is often a misdiagnosed pathology and is one of the main causes of blindness in the world population.Glaucoma frequentlycauses limitations in theactivities of daily livingand changes the patient's quality of life. AIM: The purpose of our study is to describe the life experiences of subjects in southern Italy suffering from glaucoma. METHOD: Phenomenological study RESULTS: From the analysis of interviews six main themes emerged:(1) a profound change in lifestyle, (2) casual diagnosis,(3) independent research,(4) fear of blindness,(5) fear of being a burden to family, and (6) fear of familial pathology. Two additional themes appeared: the subjects felt lucky not to have a deadly disease and were uncertain about the future. CONCLUSION: The negative aspects prevail over any positive facets. A deep understanding of these experiences can help health care professionals to deliver correct holistic support.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
